AFFECTED BY LPHS –
LPHS maybe rare but its found Worldwide -
My support group has people from all over the world including New Zeland, GB Scotland, England, Wales, France, USA, Urstraila, spain, Africa, Wales, Ireland, Germany etc.
There is a translation App on facebook which allows everyone to interact without the launage barrier making this a support group for everyone, everywhere.
PLEASE CONTINUE TO ADD YOUR DETAILS TO THIS LIST -
This is just to give you an idea of people that have lphs, there age, location and how long they’ve had the condition for -
- Carol Had it for 12 years, stay in scotland/edinburgh. As well as lphs i have addissons disease,diagnoised june 2010,both conditions effect each other so its a bundle of joy.
- Renee, 35 years old: LPHS 2 1/2 years: Tucson, Arizona USA
- Connie 34 yrs- VA USA- I have been suffering for about 10 yrs but only diagonosed for 4. Wow it has been longer than I thought. I started feeling bad around age 24 but it got worse after the age of 27.
- Robyn, I have had lphs since I was 17 I’m now 23 I stay in dundee scotland, I got diagnoised 4years ago
- Imogen, 21 years old, Somerset, England, UK. Feeling bad for 6 years, got a lot worse 3 years ago, but only been diagnosed with LPHS for 1 year.
- Andrea I’m 30 and Ive had LPHS for about 2.5 yrs
- Melanie Ill be 30 next week…had LPHS for 4 years, diagnosed last november 2010
- Sheila/Casey US 24 and has it for 8 years. Only diagnosed a year ago.
- Stepheny I’m 37 now, I remember symptoms as early as 18 years old. I got my diagnosis about 4 years ago. I live in Florida, USA, although I lived in Ohio most of my adult life.
- Dawn I am 37yo. Have had kidney stones on/off since I was 15yo. I grew up in Norwalk, CT USA, and now live in Tucson, AZ USA. Moved here in 2008. My recent pain started Feb/March 2011. So I am not diagnosed YET.
- April I am 45, have had this issue for going on 13 years…finally diagnosed with LPHS, nutcracker syndrome and UPJ in 2009, I live in Hampton Roads, VA..got worse in the last year and a half to the point I seemed to miss work more than I was there before the nephropexy.
- Holly started having kidney stone on April 11, 2007 at age 17. The pain started on April 24, 2007 and has never stopped. She’s been a sufferer for 4 years now and she is now age 21 lives in Atlanta, Georgia, United States of America.
- Vicki I am 37 and live in Dayton WYoming I have had this LHPS for 14 years, diagnosed in 2007-08, can’t really remember.
- Kristie Diagnosed October 2006 symptoms started october 2004. I am 32 yrs old and live in St. Louis Missouri, USA
- Erin i’m 20, iv had pain for 7 years, i got diagnosed in 05/06 by Urologist Mr Mark Fraundorfer. I live in Tauranga, New Zealand.
- Alison aged 50, lphs since 2001, diagnosed 2005, Herts. UK
- JUST NAMES AND LOCATION:
- CAROL SPENCE – EDINBURGH, SCOTLAND, UK
- Holly Faris – Atlanta, GA, USA
- Stepheny Smith – New Port Richey, Florida, USA
- Tonya Turner – San diego. Ca
- Melanie Botscheller – Wappingers Falls, NY
- Andrea Goonan – Philadelphia (ish), PA
- Erin Walter – Tauranga, New Zealand.
- Melanie Hall- Derbyshire UK
- Annette Crombie (Carol’s mum) – Edinburgh UK
- Monique Williamson – New Plymouth, New Zealand
- Ursula Thompson -Adelaide Greenwith, South Australia
- Angela Harris – Hyde, Cheshire, UK
- Anne-Marie Battrick,(wife of Stewart), Lowestoft, Suffolk, UK
- Susie Georget – Vermilion, Alberta, Canada
- Gale Simcoe – San Diego, CA
- Susanna Morgan – carmarthenshire, Wales , UK
- Ruthie Windle – South Vienna, Ohio USA
- Renee Wilson- Tucson, Arizona USA
- Rhonda – Oklahoma, US
- Christine Wilson – Stillwater MN
- Dawn Redfield- Tucson, AZ USA
- Gina Olnhausen Lara- Burlington, Wisconsin Lyons, Wisconsin USA
- Glenna Hall – RR 1 Northbrook, Ontario, Canada
- Tracy Lawson (wife of John) Lincoln,Lincolnshire,Uk
- Clare Perry- Bronte Country West Yorkshire UK
- Frank & Bunny Maurone…Mantua, NJ near Philadelphia, PA USA
- Sharon Wright – BOZEAT, Northants, UK
- Mark Goldsack (Bev’s partner) Weston-super-Mare, UK
- Emma White – Hastings, East Sussex, England
- Montse Cabezas – Barcelona,España
- Andy Stevenson – Perth, West Australia
- Alice Johnston – Colorado USA
- Nadeene Wiparata – Napier New Zealand
- Cheryl Hawkins-Williams – Raleigh,North Carolina & Los Angeles, California
- Pam Lunsford Musick – Fort Wayne Indiana
- Mary Dooley – Ireland
- Tina Baker – Kent, England
- Erin Boch – Ohio
- Erica Coronado – Houston, Texas
- Lissa White – Marlborough, Massachusetts – from Southern New Jersey
- Barbara Bradley – Glasgow Scotland UK
- Denise Coleman – Kent UK
- Laura Lynch-Domingues – Shelburne, Ontario, Canada
Please leave a comment with your name, age, location and how long youve had LPHS …..